We're prepping for Cataleya's heart cath on Tuesday. I have been praying for a miracle- that the test will show that her PA bands are tight enough and she can make it to August without the extra surgery. At this point, I feel bad asking for another miracle. The Lord has been pouring blessings over our family. I am so thankful for our beautiful daughter and the little bit of quiet we've had in the past week to enjoy her before we get started on the scary heart stuff.
"God can do anything, you know—far more than you could ever imagine or guess or request in your wildest dreams! He does it not by pushing us around but by working within us, his Spirit deeply and gently within us." Ephesians 3:20
This morning when I cleaned Cataleya's G-tube, she seemed like she was in pain and her skin looked a little pink. I gave her Tylenol and didn't think too much of it because she's been on antibiotics for the past 9 days anyway after some bloodwork showed a high white count. By the time we got out of church 3 hrs later, her tube site was draining and obviously infected. After a call to the pediatrician, we headed to emergency. It was the fastest emergency visit we ever had- in and out in over and hour. We left with a topical antibiotic and they did some fancy stitch/balloon tricks with the Gtube to keep it in place. While it's never fantastic to have your baby be infected with anything, this is probably not a big deal EXCEPT when it comes to the surgery in two days. They may cancel it if she is immune compromised.
I have lots of feelings about this. I'm nervous abut the heart cath and it's findings. Canceling the procedure would certainly give me some time to relax this week. on the other hand, I need to know what's going on in her heart and what we're going to have to do about it. If she needs the artery bands redone, we want her to get it sooner rather than later. I think the final verdict is that I want to have the heart cath done on Tuesday, and I want the results to determine that she doesn't need another heart surgery until August.
They took cultures from her Gtube site and sent them away today. When the results come in tomorrow, the cardiologist will decide if we can move on as planned for Tuesday. Right now, I'm standing on His promises:
"The Lord heals the brokenhearted and binds up their wounds." Psalm 147:3
"The Lord himself goes before you and will be with you, he will never leave you nor forsake you. Do not be afraid, do not be discouraged." Deuteronomy 31:8.
And it doesn't hurt to have such a cute little motivator to keep myself together:
She looks so big here!
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