Too Fast To Keep Up

I was in the middle of writing a post about how we were home from the hospital and how I was super irritated with having Cataleya on oxygen and monitoring because its a giant pain and I never know if I'm doing it right.

Home Finally

Trying to have some floor time with her 3 machine friends

Before I could proof that post and get it up- we're back in the hospital. Such is life with a cardiac cutie like Cat. Here are my Facebook updates from today. I seriously don't know how anyone stays friends with me on Facebook when all my status updates are about medical stuff that only I care about:

11hrs ago-

"We just can't stay away!"

8hrs ago-
Since we've been home, Cataleya has needed increasingly more oxygen everyday. Last night I was unable to get her oxygen sat where it needed to be even with our highest O2 setting at home. I brought her in and the chest Xray shows more fluid in/around her lungs than last week-mimicking heart failure. She didn't have a temp when we got here, but after an hour or so she was burning up at 102.9- mimicking an infection. So we're back square 1- something's wrong but it could be anything. They were going to send us to the PICU, but later decided she'd be OK on the regular unit. Thank you for keeping C in your thoughts. We appreciate it.

7hrs ago-

Finally getting some rest in the humidification tent

about an hour ago:
Remember when I said Cataleya was burning up at 102.9? Try 104.2 AFTER 2 rounds of Tylenol and a round of Motrin. The Dr said, "She's tricky.." Round 3 of Tylenol through the tube- let's see...

Now:
Temp down to 100 after a cool bath and tylenol #3. We did another chest Xray and some blood gas to double check everything. I think she's perking up though :)

The Cardiologist said she has to be 6 weeks fever free before surgery, so that's cancelled.

Looks like we're in here for a while...